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GETTING HELP


Getting Help - printable version - cancerpage.com

     don't wait | talk to your doctormeasuring pain | rating pain

Don’t Wait To Seek Relief

Pain can affect you in many ways. It can keep you from being active, from sleeping well, from enjoying family and friends, and from eating. Pain can also make you feel afraid or depressed.

Many times cancer patients don't take pain medicine or other treatments until after they are experiencing significant pain. In fact, a patient should not wait until the pain becomes severe to take medicine or seek relief. Pain is easier to control when it is mild than when it is severe. 

Some cancer patients worry about "taking too much medicine" in fear that  their pain relief medication will stop working as a result. While the medicine will not stop working, your body may get used to it. This is called tolerance. But tolerance is not usually a problem with cancer pain treatment because the amount of medicine can be changed or other medicines can be added or substituted.

With treatment, most cancer pain can be controlled. More importantly, most pain can be prevented before it has an impact on your quality of life.

Communicating With Your Doctor

To make your pain medicine more effective, the American Pain Foundation suggests asking yourself the following questions regarding your cancer pain—and then relaying this information to your physician:

  • Where is the pain? You may have pain in more than one place. Be sure to list all of the painful areas.

  • What does the pain feel like? Does it ache? Throb? Burn? Tingle?

  • How bad is the pain? You can use a number scale to rate your pain from 0 (no pain) to 10 (the worst pain).

  • What makes the pain better or worse? You may have already found ways to make your pain feel better. For example, using heat or cold, or taking certain medicines. You may have also found that sitting or lying in certain positions or doing some activities affects the pain.

  • If you are being treated for pain now, how well is the treatment working? You may want to describe how well it is working by saying how much of the pain is relieved—all, almost all, none, etc.

  • Has the pain changed? You may notice that your pain changes over time. It may get better or worse or it can feel different. For example, the pain may have been a dull ache at first and has changed to a tingle. It is important to report changes in your pain. Changes in pain do not always mean that the cancer has come back or grown.

Then ask your doctor:

  • What medicine(s) can you give me to relieve my pain?

  • How and when should I take the medicine(s), and for how long?

  • What side effects are common? What should be done if they occur?

  • Should I try non-drug methods to relieve my pain such as relaxation or massage?

Measuring Pain

There are several different ways in which cancer pain is measured:

  • Severity – Patients are often asked to rate their pain on a scale of 0 to 10, with 10 being extremely severe pain.

  • Temporality – This assesses how often pain is felt, for how long, and at what time of day it is usually better or worse.

  • Location – This determines the exact place where the pain is from, whether it is superficial versus deep, local versus generalized.

  • Quality of Pain – This is a descriptive measure such as feeling a stabbing, burning or crushing sensation.

  • Modifying Factors – This tells the doctor what makes the pain better or worse. For example, heat or cold, taking mild analgesics, or simply modifying a position may alleviate the pain.

Rating Pain

Regarding the severity pain scale, the following general guidelines could be used to “rate your pain”:

0 – Pain Free.

1-2 – Mild Pain. You are only aware of the pain when you are focusing on it.

3-4 – Tolerable Pain. The pain can be ignored somewhat.

5-6 – Distressful Pain. You are in pain but able to continue with some physical activity.

7-8 – Severe Pain. You can’t concentrate and can’t do anything more than simple tasks.

9-10 – Disabling Pain. The pain is overwhelming and must be taken care of immediately.

Develop a Pain Plan

Taking medicine regularly and as your doctor tells you usually will help to keep pain under control. But ask your doctor or nurse how and when to take extra medicine. If some activities make your pain worse (for example, work-related exertions), it may be recommended that you take an extra dose of pain medicine beforehand. What's important is that you discuss all these issues with your physician.

If one medicine or treatment does not work, there is usually another one that can be tried. Also, if a schedule or way that you are taking the medicine does not work for you, changes should be made. It may be helpful for you to keep a record of how the medicine is working—and to share this information with your doctor.

Sources:


This page was last edited on 05/07/2002

Written by Richard Zmuda, senior writer, cancerpage.com
Edited by Rachael Myers Lowe, cancerpage.com

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Disclaimer - The medical information on this website is presented as an educational resource and should not take the place of advice and recommendations of your personal physician. This information may help you to communicate with the physician and other health care professionals involved in the diagnosis and treatment of your disease. Support groups and cancer organizations also can be an important source of assistance and support for cancer patients, their families, and their friends.
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