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There
are some basic things cancer patients and caregivers can do to take care
of themselves. Eating regular meals, drinking lots of water, and getting
enough rest helps the body cope during times of stress. It is also
important to take time for fun. Fun is however you define it; it can be
going out to do something or spending the day in a different room in the
house just for a change. Planning a special or different activity offers
something to look forward to. For caregivers, allowing for time away from
the patient is a good idea, too.
It
is also very important to have support.
Support can come from family, friends, people from your faith
community, other cancer patients or their families, etc. Having someone
with whom you can share your feelings or problem-solve is invaluable. You
can find a cancer support group by asking your health care provider or
calling a local chapter of the American Cancer Society. Cancer support
groups offer patients and their families an opportunity to connect with
others going through similar experiences. Usually, a professional leads
the support group meetings. Sharing
experiences, suggestions and information can be very helpful and
personally satisfying, whether you are a newly diagnosed patient, a
caregiver or a cancer survivor.
Quiet Time
Finding
quiet time or time to still your mind helps reduce stress and can help
prepare you for death. Contemplation
is described as listening to God as opposed to talking to God.
The goal is stilling the mind.
Doing contemplation for 15 to 20 minutes every day becomes a
special time.
A Contemplation
Exercise
Find a quiet place.
While
either sitting up straight or lying down take several deep breaths,
breathing from your abdomen.
Try
to relax your body and let go of your worries, pain, etc. as you take these
deep breaths.
Think of something or someone you love and fill your heart
with this love.
As you exhale
sing a word that is important to you.
What word might be “God”, “Jesus”, “Hu” which is an ancient
name for God, “Ohm”, or any number of words.
If you do not believe in God, you can sing “Ah”.
Pick whatever feels comfortable or try out several different words.
Sing
the word for 10 to 15 minutes to help focus the mind.
As thoughts come into your head, gently let them go.
If you like, you can focus on the inner screen between your eyebrows
or
you can pose a question silently in your mind as you sing your word.
Some people see a white
or colored light on
their inner screen. Just
notice if you see anything. You
may not.
After
10 to 15 minutes of singing your word, stop singing and continue to breath
deeply in and out in silence. Do
this for an additional 5 minutes. During
the 5 minutes of silence listen for the answer to your question to come to
you and notice if you see or hear anything.
And for a more in-depth discussion of
meditation and guided imagery, two techniques found useful by some for
reducing stress and promoting a feeling of well-being, CLICK
HERE to go to the Meditation article..
Getting
the help you need
There
are many sources of help. In
addition to family and friends, professionals such as a care manager,
social worker, home health nurse, health aide, and hospice team members
are all individuals who can help problem-solve or help give care.
Patient
advocates also can help. Patient
advocates are professionals or volunteers who help assure patients get what is in their
best interests; inform patients of their options; advocate for and support
their decisions; and help them access the best care available to them.
The social worker at your cancer treatment center and your care
manager, if you have one, are two professionals who act as your advocate.
Many hospitals have people outside your treatment team called
patient advocates who advocate for you during your treatment in the
hospital. You can also hire a
patient advocate. A local
chapter of the American Cancer Society can help you locate a volunteer patient advocate if you decide you
need one. These services, however, may not
be available in all areas.
If
you need financial help a social worker where you receive care can help
identify local resources for the specific help you need.
On the Patient Advocate Foundation web site at
http://www.patientadvocate.org/report.php
there is a guide to help you locate different financial resources
available in each state.
Signs
You Are Overwhelmed
Many
people think they should be able to handle what ever comes along in life.
Often they do not even consider asking for help.
There is no shame in asking for help.
Your health care providers will often ask how you and your family
are doing. Be honest.
They can only offer help if they know you need it.
Patients may protect their family while the caregivers focus on the
patient and neither realize they themselves are overwhelmed.
Here are some signs that you are overwhelmed and need professional
help:
-
Being
unable to provide for your basic needs.
If you find that you are not eating, sleeping, unable to work
or do basic tasks around the house, you may be depressed.
Every now and then people loose sleep or do not have an appetite.
However, if it lasts for weeks or months and is not due to a
disease or treatments then you need to have help.
- Having persistent
thoughts of self destruction.
Every now and then people may have thoughts of hurting
themselves. However, if you
have persistent thoughts of killing yourself you need help.
If you find yourself coming up with a plan for committing suicide
tell someone, call a national suicide hot-line at 1-800-784-2433 or
1-800-999-9999, go to an emergency
room, or dial 911. Please get
help.
- Having one
particular grief reaction for months.
Dr. Kubler-Ross identified stages of the grieving process
that people go in and out of as they grieve.
However, being angry, in denial, depressed, or having no feelings
at all for months at a time indicates you need professional help.
-
Having a drug or
alcohol abuse problem.
If
you have pain, you need to tell your doctor. They will order pain
medication so you will be comfortable.
Do not worry
about becoming addicted to the pain medication. Often people are under-medicated for pain.
However, if you are taking medications that have not been
prescribed for you, getting the same prescription from different doctors
and taking both prescriptions, or using street drugs you need help
.
Written by Linda Miller, RN, MA
Edited by Rachael Myers Lowe, cancerpage.com
This page was last edited on 04/18/2008
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